Scary Week

Over the past few days we have had a bit of a scare with Kaden. Miki and I have been noticing that the pump Kaden had installed looks like it’s sticking out further than in previous weeks. We chalked it up to reduced swelling after surgery and thought we would...

Halloween

We had a great Halloween weekend! Kaden was very proud of his airplane. Again I think he likes all the attention he gets more than being in the plane. We all went to a Halloween party at New Berlin Therapies where Kaden does his therapy. They have a great haunted gym...

Appointment #2

Well, this past week has had ups and downs. Kaden was very tight on Sunday and Monday of this week. Miki and I know there will be highs and lows in Kaden’s tone so we need to remind ourselves that it is only the beginning. Because of the medicine and the muscle...

First Post-Op Appointment

This morning was an interesting morning in the Stark house. To start, Miki woke up with a stomach flu. Then I had to wake Kaden up about 7:00 AM to get us out of the house by 7:30. The earliest he’s been up since the surgery has been about 9:00 AM. Needless to...

Baclofen Pump

I am starting this blog because of all the support we have received over the last couple years for my son Kaden. We wanted to have a place to document his progress and let friends and family know what’s happening with Kaden and his fight with Dystonia.My 5 year...