Well, it’s been a while. Nothing much has changed. We’ve kept plugging along with therapy and dosage increases for Kaden’s Baclofen pump. HIs tightness is a little better. While the loosening of his muscles has not necessarily helped with function, I do think it has made him a bit more comfortable. Hopefully we will get to the right dosage of medicine and things will start to progress from there.
About three weeks ago Kaden did an intensive 4 days of therapy with a different type of therapist. The therapy is called the Anat Baniel Method or ABM. It is related to another form of therapy called Feldenkrais. These are not considered mainstream methods of therapy but practitioners have had considerable success with children who have brain related diseases and injuries. Kaden did 2 sessions per day for 4 days and he seemed to like it. We didn’t see overwhelming results but we really liked the practitioner, Pati.
Today we drove down to Chicago and met with another practitioner who is sought after all over the country. Her name is Marcy and Kaden did very well. After just two 45 minute sessions, she had him loosen up a bit and we can really see how this might be beneficial for Kaden. We are going to continue with Pati here in Milwaukee, at least for 3 or 4 months, and see how Kaden responds. The difficult part will be discontinuing his PT and OT at the current facility we use. They have been wonderful to Kaden and to our family but we really feel it’s time to change things up a bit.
Kaden also had Make a Wish come to see him and the whole family two weeks ago. He has been granted a wish! He chose Disney World as his first choice and the San Diego Zoo as his second. I think Kylie and Jacob are pulling for Disney World. Kaden will be very popular with his siblings for quite some time I think. Either way, it will be a great adventure for our family.
We all had a great 4th of July! Very busy. Fireworks, parade, pool party. I swear the kids could have slept for a couple days straight. I know Miki and I could have.
Camp is right around the corner for Kaden and Kylie. This is the 1st year Kaden will have just a helper and not mom, dad, or a grandparent with him. I think he will handle it well. Especially if he gets a cute girl as a helper. He is such a flirt!
So, that’s all for now. Should be an interesting couple of months. We won’t wait so long to post next time.